Suni Lee‘s Incurable Kidney Disease: Diagnosis, Recovery, Comeback

“There were so many times where I thought about quitting and just giving up because I was so sick,” she said. “But once I had those people around me who lifted me up and supported me and just made sure that I was good, I knew that this is something that I wanted.”

What’s going on with Suni, and how is her health now? Here’s what she’s shared.

What happened to Suni Lee?

In February 2023, Suni woke up with unexplained swelling that she attributed to her tough training schedule. At first, her ankles swelled—then her face, hands, and legs. “I just kept getting more swollen,” Suni shared in an interview with SELF .

Subsequently, the gymnast had to leave her NCAA gymnastics season at Auburn University early and put her training on pause for six months.

About a month after she first developed symptoms, she stopped training entirely, left Auburn, and moved back home.

“I was just rotting in my bed,” she told Sports Illustrated. “I couldn’t talk to anybody. I didn’t leave the house.”

What is incurable kidney disease?

Suni didn’t share an exact diagnosis with the public, but she did reveal that her condition has no cure. Her medical team also thinks her diagnosis may change as they learn more about what’s happening with her health, SELF reports. (The magazine also notes that her condition isn’t common.)

Her doctors later realized that Suni had two forms of kidney disease, according to Sports Illustrated.

How do you stop kidney disease from getting worse?

There are two main causes of kidney disease, according to the American Diabetes Association (ADA): diabetes and high blood pressure. With that, there are a few things that many people with kidney disease can do to stop the progression of the condition.

That includes managing your blood pressure, monitoring your blood glucose, eating a kidney-friendly diet, exercising regularly, and being cautious about taking OTC medications and supplements.

Suni first experienced symptoms in February 2023 and gained 40 pounds.

Suni first developed symptoms when she woke up one morning with swollen ankles, which she originally thought was due to her intense training. Her doctors originally thought Suni was having an allergic reaction, but the swelling didn’t go down.

“I think I gained, like, 40 pounds,” Suni said. “It affected my whole body and how I looked and how I was feeling.”

In addition to the swelling, Suni experienced hot flashes, cold spells, headaches, cramping, constant pain, nausea, and lightheadedness. “I could not bend my legs the slightest. I couldn’t squeeze my fingers,” she recalled to SELF.

After Suni told her doctor that she was having trouble urinating, she underwent more tests and eventually had a biopsy of her kidneys. That led to her diagnosis. 

She thought she might never be able to do gymnastics again.

Suni said that she was understandably scared while doctors tried to work out a diagnosis. When she tried to train, she found that she couldn’t perform the way she normally did.

“I kept peeling off the bar. I couldn’t hold on,” Suni said. “My fingers were so swollen, and I couldn’t even do a normal kip cast to handstand on bars.”

She remembered thinking, “What if I’m never allowed to do gymnastics again or I can never make it to the Olympics again?”

She had to rework her training.

After her kidney diseases forced her to press pause, Suni had to take measures to work around her conditions.

“The kidney disease took me out for a couple of months,” Suni told E! News in March 2024. “I just got a lot weaker because I wasn’t in the gym training. I’ve been doing a lot of physical therapy and try to keep my body as healthy as possible and feeling good.”

Suni called her training “a learning process,” adding that she and her team are “taking it day by day.”

“My coaches have never had to deal with someone who has had two kidney diseases,” Suni told NBC at the Team USA Media Summit in April. “Obviously, I’m like, ‘Okay, I don’t know any other gymnasts that have two kidney diseases that have had to go through this.’”

She’s currently in remission.

Suni nabbed a bronze medal on beam at the 2023 U.S. Championships, but declined an invitation to the world team selection camp in 2023 a few weeks later, per NBC Sports.

“I think my lowest point was after championships,” Suni told the outlet at the Team USA media summit. “I don’t know. I pulled out of the world championship selection camp and I stopped doing gymnastics for four months.”

But things started to turn around for Suni in January 2024, when she got a phone call that changed everything. “It was just, like, a simple phone call,” she told NBC Olympics. “I can’t really talk about it, but it was a simple phone call. And I was like, ‘Oh my gosh, I’m going to the gym tomorrow and I’m gonna be better than I ever was.’ And that was the day I was like, ‘Yep, this is what I want. And I’m gonna put my mind into it.’”

“That’s when she started saying, ‘I think they’re getting a handle on it,’ ” her trainer Jess Graba told Sports Illustrated.

Suni is now on medication to help control her conditions, and they’re now in remission. “We have it under control now,” she told CBS News at a Team USA media summit. “We know what to do and the right medication to take.”

Suni credits her team doctor with her recovery.

Suni’s health—and ability to compete—remained a question for much of the lead-up to the 2024 Games. But after she took her place alongside the rest of the United States gymnastics team in June, Suni gave props to her team’s doctor for helping her make it back to the mat, per a report from The Athletic.

When asked how she made it this far, Suni pointed to Marcia Faustin, MD, the co-head team physician for USA Gymnastics. Faustin likes to stay behind the scenes, according to the report, and felt the urge to make herself invisible at the attention.

“The joke on the team is I’m never embarrassed. Like ever,” Faustin shared with the outlet. “They’re always asking me, ‘Do you ever get embarrassed?’ Well, they found it.”

At first, Suni and Faustin were dealing with Suni’s immediate symptoms. “It was incredibly, incredibly difficult,” she told the outlet. “In the beginning, we weren’t even thinking about gymnastics. We were thinking about what her life could be.”

Though she’s based in California, Faustin stayed in constant contact with Suni’s medical team and trainer throughout her journey, calling her a “warrior.”

“She was constantly checking up on me, making sure I was okay,” Suni told reporters. “She reminded me of my worth because she knew I’d be so disappointed in myself if I gave up this dream. And look at where we are right now. We made it. We did it together.” 

“What she’s come out of and what she’s doing just tells us we should never box humans in,” Faustin added. “We should allow them to flourish and hold that hope for them.”

Faustin was the same physician at the center of another Olympic medical emergency: In 2021 during the Tokyo Games, Simone Biles got the twisties, a dangerous condition that can block gymnasts’ bodily awareness and even cause serious injury during competition.

Suni is ready for the Olympics.

Despite her health battle, Suni is optimistic about the future. The Minnesota native told Women’s Health at the Team USA Media Summit that she was focused on her training and doing “everything possible” to make the Paris team.

“It feels really good to be able to just go out and to wake up in the morning and be able to go to practice,” she said. “My doctor told me that we would never thought that I would be here, so it feels really good to be able to be doing gymnastics.”

Suni has reiterated that sentiment online, writing on Instagram last year that “this comeback was so much more than my return to elite gymnastics.”

“It was me proving to myself that I can overcome hard things, and to hopefully inspire others to never let life’s setbacks stop you from going after your dreams,” she wrote.

Since she’s been in remission, Suni has also showed some appreciation to an organization close to her heart: the American Kidney Fund.

“My experience with kidney disease has been challenging—and I’ve worked so hard to persevere in the face of a life-changing diagnosis to be able to represent my country in Paris this month,” Suni wrote in a July 11 Instagram post. “I know firsthand that kidney disease can happen at any age, and sometimes the cause of your disease isn’t clear-cut. But I want to encourage others to be informed about their kidney health and self-advocate for a treatment plan that can allow them to live their best life.”

Good luck, Suni!

Korin Miller is a freelance writer specializing in general wellness, sexual health and relationships, and lifestyle trends, with work appearing in Men’s Health, Women’s Health, Self, Glamour, and more. She has a master’s degree from American University, lives by the beach, and hopes to own a teacup pig and taco truck one day.

Jacqueline Tempera is an award-winning writer and reporter living in New Jersey with her many pets. She is a business owner and a double Scorpio who loves all things astrology and reality television. She is passionate about body diversity and representation, mental health, and the fight to end sexual assault and harassment. To learn more about Jackie, follow her on Instagram @jacktemp or visit her website at jackietempera.com.